Queensland families raising children with progressive genetic conditions face a constant struggle. The diagnosis throws you into a whirlwind of medical terms, constant care needs, and isolation. At Dinkum Disability, we get it. We're your dinkum mate (genuine, honest, reliable), offering unwavering support and a true blue commitment to making a real difference in your family’s life.

Dinkum Disability is a young and growing organization built on a deep understanding of the immense challenges families face after receiving a devastating diagnosis: a childhood-onset progressive genetic condition. These conditions cause a gradual decline in function, leading to a constant process of adaptation and coping with new limitations. This journey is marked by a profound sense of loss and grief for families who witness their child's abilities slowly diminish, with no cure available.

Traditional healthcare models often struggle to address the unique needs of these families. They may excel at treating specific symptoms, but often miss the critical aspects of social connection and navigating the complexities of daily life with a progressively deteriorating condition.

Dinkum Disability takes a different approach, guided by the social model of disability. We go beyond traditional therapy to focus on removing barriers that prevent families from fully participating in life. This includes fostering a strong support network, where families can connect with others who understand their situation, share resources, and build lasting friendships. This sense of community empowers families to navigate the challenges they face and create a fulfilling life for their child.

While top-notch occupational therapy remains a core service, Dinkum Disability is your comprehensive support system. We offer a range of services that grow alongside your family's needs:

• Family Support Groups: Connect with others on the same journey.

• Educational Workshops: Gain valuable knowledge and skills to manage your child's condition effectively.

• Advocacy Support: Navigate the NDIS system and access the resources your child deserve

Dinkum Disability is committed to supporting you and your child every step of the way. Let's work together to create a fair dinkum life for your child.

At Dinkum Disability., we live by the principles of "dinkum" – genuine, honest, and fair. We're dedicated to enriching the lives of our community, especially those with progressive genetic conditions and their families. Join us in dismantling barriers, celebrating strengths, and fostering a true sense of belonging